Wednesday, May 13, 2015

Our lives are made up of a series of moments...

Lately, thinking of you is torture.  Not just because you're not here, but because when I remember you, I remember how much you suffered.  It almost hurts more than the fact that you died.  I am scared that you felt pain, or that you were scared.  I don't know how to describe the feeling, other than telling you that it makes me feel like I'm dying on the inside.  My heart is broken for you, and to add to the hurt, I'm torturing myself more by watching Now is Good, again. It helps me to feel the pain that I try to hold inside all the time, and it breaks my heart over and over again.   


I wish my memories of you were happy ones, but instead, I remember how pale your skin turned, and how you almost looked like you could be sleeping.  I remember holding you, and your arm falling behind my back.  I remember the coolness of your hand, and how I held it in a way that would make me feel like you were holding it back too.  Now all I have left are little moments that I'll never get back.  

 I'm finding it harder and harder to remember how happy you always were, even though you spent most of your life happy, even when you had no reason to be. 


 I just want this pain to go away.  How am I supposed to live the rest of my life without my son?  Why is life so cruel, giving me something so special, and then taking it away from me?  I just don't get it...I need something in my life to make sense!

The more I try to understand life, and why this happened, the more I don't understand it.  People try to make themselves feel better by believing that everything happens for a reason, but it's just not true.  There is no reason for an innocent child to suffer, and die.  Trying to come up with a reason for all the terrible things that happen in life is crap.  Terrible things just happen.  And we just have to live with it.  





Thursday, May 7, 2015

Reality hits, and you're gone again.

It's been just over a month since you died, yet it feels like it's been a year.  Every morning, for just a moment when I wake up, I think you might be waiting for me down stairs on your bed, and then reality hits, and you're gone again.  I feel like I'm living in an alternate universe where I have to tell myself everyday that you really did exist, because now that life feels so far away.  I try to keep myself busy everyday so I won't be sad, but the sadness still finds a way to creep back into my heart.  The worst part is reliving that horrible day when you died, over and over, again.  I remember every moment of your breath slowing down until you just couldn't breathe anymore, and it makes me so, so, sad for you.  You had to go through so much pain and suffering, and it kills me.  I wish I could have taken all those moments away from you.  Even through the toughest times, you were brave and had a smile on your face.


It makes me so angry, because there was never a cure for you.  You never had a chance, you only had time.  We went back to the clinic the other day, the doctors read us your autopsy.  The tumor had grown very large, and wrapped itself around your heart, leaving you with just a small piece of your right lung left to breathe from.   They said that the tumor showed that all of the chemo you received while we've been in Boston, did nothing.  Your tumor did not shrink at all, it may have given you just a little bit more time, but it never shrunk.  

It's hard to think that this is how the rest of our life will be.  I'm scared for us, and I'm scared for you.  I just wish I knew that you were okay.  I wish I could tell you how much I love you, and miss you.  Your sister misses you too, she says your name now.  She'll point to a picture of you on the wall and say, "Ti-tin."  I'm scared for the day when she'll ask me about you.  How do I tell her that you died?  It's hard enough when I'm around strangers and they ask me about my kids.  How do I say that it's just one kid now?  I really don't know the answers to anything anymore, life doesn't really make sense.  I'm just trying to do my best to go through each day until we meet again.  We all love you so very much, Christian.  You will be in our hearts and on our mind, always...


"Did you know that childhood cancer kills more children than any other disease in America?  Yet the National Cancer Institute spends less than 4% of its annual $5 billion budget on pediatric cancer research. We believe that our elected leaders have an obligation to protect our most vulnerable citizens by making childhood cancer research a national priority."- The Truth 365

Below I have linked a petition to urge the President and Congress to make Children's Cancer Research a PRIORITY!  Please take a few moments to sign, and if you can, please donate, every little bit helps!

http://www.thetruth365.org/petition/
http://www.thetruth365.org/one-voice/donate/
http://www.childrenscancer.org/main/ways_to_donate/